I’ve been thinking about all of you a lot lately. Like a lot of you, I am tired of COVID and tired of being isolated and, well really, just tired.
It was a year ago this month that my medical kiddo had her 50 through 59th surgeries, which just make it interesting also included kidney failure, an emergency intubation as she temporarily lost her eye sight and infected brain and spinal drains with not one, but two different bugs. It actually in some ways feels like a million years ago or even that it never really happened. But then sometimes, in the quiet moments, it feels like it was literally yesterday. I can see her suffering, I can smell the anesthesia coming off her after surgery and I can feel the terror rip through me. And I know most of you, if not all of you, have felt this exact same way. That’s why we are here, on this Facebook page, supporting one another.
It is also why we, as a research team, are so greatful for everyone who took the time to participate in our PTSD study a little over a year ago. We are so proud to let you know the article, “Prevelence of Post Traumatic Stress Disorder in Caregivers of Pediatric Patients” was published in Child’s Nervous System. 44.6% of caregivers in the study screened positive for PTSD symptoms. To put this in perspective, the average incidence of PTSD in the general public is 1-3% and around 10% in the active military.
I am attaching the link to the abstract of the article. I am trying to figure out how to post the full article, but until then, if you would like a full copy of the article, you can email me at Wendy.firstname.lastname@example.org.
A special thanks to Hanna Moore, Lori Bliss, Dr Mehta and Dr Souster for working on this project with me. Was truly a team effort.
Background Having a child receive a neurosurgical diagnosis creates significant stress and anxiety in caregivers. The stress of these life-threatening and emotionally charged diagnoses may put caregiv...
Last night for zoom bingo is May 27. Prizes to come!!!! If you are new and would like to participate please email email@example.com Hope to see you there. Bingo for the children up to 12 is at 6pm. 715 is for the teens!!!!!!! ... See MoreSee Less
It is with a very heavy heart that we announce the post-postponement of Camp Everest 2020 until the Summer of 2021. In light of the restrictions on group sizes and that many of our campers are immunocompromised, I think it is the safest thing to do.
Aww I am so sorry, but I think it is the best plan for everyone involved. I know how much effort you all put into it and how much joy it brings, so I know how hard this must be for you guys. But I know next year will be even more amazing with all the extra time you guys have to plan. <3
It's always so sad to here of this as it's such a great opportunity for the kids. The most important thing is to keep everyone safe and doing this is exactly what needs to be done. Hugs to you all.
🙁 Very sad news. Thanks for letting us know and keeping the safety of kids and volunteers as a main priority. We appreciate all you do and will miss camp so much this year.
We are sad but fully agree !!! I'd much rather postpone all things for a year or 2 and get to enjoy them for years to come than try and push through stuff and potentially lose them.
Awe this is so heartbreaking. Parker will be so upset but it’s for the best. What a tough decision. Thinking of you Wendy
Aww. Sorry Hannah. Make sure you have lots of fun this summer doing great things.