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A very brave little boy by Martha Careiro

In August, when we received the call that a new little member of our family had come into the world, we were oblivious to what was about to happen. I remember sitting next to my very ill 87-year-old mother when my nephew told me the baby was very ill and could possibly die.

I prayed and asked God to do what he thought was best for both of them.

We buried my mother four days later, and 28 months later, our big boy is thriving. He is a child with so much life in his little body and so much drive. He is making great progress and rarely do we see him give up. He is such a happy little boy, and he probably has no idea what is happening.

He has so much to give and we are elated that he is doing so well. We have learned so much by watching him and his parents. It is hard to watch him struggle at times, and I know that it is selfish to be thinking of our feelings at this time and not his. He is such an inspiration for us. It’s easy for us to say, “I can only imagine what it must be like,” but there is no imagination that can prepare you for what it is like for those children and their parents. It is a difficult journey and you truly can’t understand unless you are walking in their shoes.

He is a champion and we love him and are so proud. One day he will walk tall. He is a hero to us.

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